2017 Kai Update

2017-02-23_00072017 has been pretty full for Kai so far. We started the year off by traveling again to Ohio for another surgery for this sweet guy.

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This surgery related to his bladder, as well as a correction that needed to be done after his previous colorectal surgery.

We were all happy to be back at the Ronald McDonald House, but not at all happy to be back in the now familiar surgery routine.

2017-02-23_0012Doctors, doctors, and more doctors. This guy had enough poking, proding, and testing!

2017-02-23_0013 The colorectal clinic at the hospital gifted Kai with this “poop pillow”. They sure know how to bring out some needed belly laughs!2017-02-23_0011

2017-02-23_0014 2017-02-23_0015This surgery made me more nervous than some of his previous ones. Although it was a pretty straightforward surgery, this one was a bit of a test to see if his bladder could “wake up” and resume normal function. We knew that it was a gamble, but this was the only way that we could find out.

2017-02-23_0018Initially the surgery appeared successful, and after only a few days he was discharged from the hospital.

2017-02-23_0020We had to stay in town for a couple of days, so we took advantage of fun activities at the Ronald McDonald house, and fed our sweet boy anything that would make him smile.2017-02-23_0019Love this picture, taken moments before I carried him out of the ice cream store, fell down the stairs, and badly sprained my ankle (I will spare you the pictures).

Only a couple of days after we got home, Kai spiked a fever. I took him quickly to the pediatrician, who diagnosed him with a kidney infection. We were still hopeful that this was a fluke and that after his body had a chance to heal a bit that he would be okay.

On Valentine’s Day, Kai turned five!

This is the very happy boy that we were celebrating at breakfast.2017-02-23_0021 2017-02-23_0009

And this is the boy that I saw only 2 hours later after his school called me to say that he was running a fever.

2017-02-23_0008It was the most pitiful birthday boy I have ever seen. Just heartbreaking.

After going back to the pediatrician we found out that it was yet another kidney infection.

At this point, it appears that his body is not responding well to the surgery, and that his bladder is not able to work to the extent that it needs to to prevent urine from backing up to his kidney. Because Kai only has one kidney, this situation could become dangerous for him.

Tomorrow we go to our local hospital for a battery of tests. Next week we will meet with the urologist to figure out our next steps. I feel heartbroken for him.

2017-02-23_0022A week after his birthday we were finally able to celebrate him in style with family. Despite what he has to go through on a daily basis, this child could not have a sweeter, purer heart. He is love and happiness personified, and I am forever thankful that I get to be the one to walk this road with him. I get to be the one to hold his hand as he falls asleep with anethesia, and I get to be the one to hold his hand as he wakes up. I get to be the one to wake him up singing “Happy Birthday”, and snuggle him at night.

He is a joy and a blessing, and he is dearly loved. I continue to pray for easier days ahead for him.

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2 Responses to 2017 Kai Update

  1. Edna Bacon says:

    What an amazing, loving family you are. Thank you for letting us witness your love, struggles and joys.
    With love, Edna

  2. Kimberly Parker says:

    Thinking about y’all!

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